When I was diagnosed with Gilbert's Syndrome I was overcome with two diametrically opposed emotions. On one hand, I was overcome with grief, knowing that GS could hold me back from everything that I want to do with my life. I thought, "Gilbert's has come to steal my life from me." As soon as this thought entered my mind I was drawn by an opposing emotion. I was lifted with hope and understanding. Suddenly my life made so much sense - this is why I have difficulty dealing with stressful situations, this is why my wife won't look into my yellowed eyes, this is why I developed so differently from the other boys . . .
This understanding has brought me to a higher level of self-awareness and has given me the hope to overcome all of my Gilbert's associated shortcomings. I want to hear your story. Tell us how you've pushed your way through the yellowed haze of dispair. Teach us what has lifted you up so that we too may be lifted.
Thanks, Joe
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Yea, so I'm a survivor. That's to say, I barely survived. I don't think I'm familiar with a nastier disorder that causes such debilitating symptoms. I knew something was wrong when my pubic hair started to turn yellow, it wasn’t even from my dye. Adam, maybe you had a similar experience. Anywho, I went straight to the ED and showed them the new surprise I found. Well, they all laughed at me and sent me home with the implication that I was some stupid guy. Yea, that hurt.
Well, I put my tail between my legs and went home (so to speak - no Dusty, I really don’t have a tail). That was the MISTAKE of my life because about 30 min later, I experienced the most incredible shrinkage of my life, my fingers had become yellow and so necrosed that they began to diminish (Taintor, I know what you were thinking . . .) Well, I thought to myself, “there’s no way those guys at the ED will turn me away now.” So, I went back to the ED, and sure enough, they let me stay. To make a long story short, they biopsied my liver and did whatever they do with it. An hour later they came back to me and told me that I had Gilbert’s syndrome. I said, “I don’t know anybody named Gilbert.” They then explained that it was a disorder of abnormally high billirubinemia. –whatever that means. Well they did their thingy and I walked away a whole man or was it a woman (they did say something about gynecomastia). Anyway, my fingers experienced unshrinkage and all was WELL.
I hope this story inspires all.
With great love and lots of hope for all you Gilbert lovers.
--Anonymous
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